Resources on dementia for health care providers and caregivers


Resources, books, and practice guidelines

[Page updated 1/30/2019. Note that some resources/websites may have changed. -Ed]


Mace NL, Rabins PV. The 36-Hour Day: A Family Guide to Caring for Persons With Alzheimer’s Disease, Related Dementia Illness, and Memory Loss in Later Life. Baltimore: Johns Hopkins University Press; 1999.

Mayo Clinic Guide to Alzheimer’s Disease: The Essential Resource for Treatment, Coping, and Caregiving. bookstore; 2006.

Rabins PV, Lyketsos CG, Steele CD. Practical Dementia Care. New York: Oxford University Press; 1999.

Warner M, Warner E, Warner ML. The Complete Guide to Alzheimer’s-Proofing Your Home. West Lafayette, IN: Purdue University Press; 2000.

Radin L, Radin G. What If It’s Not Alzheimer’s? A Caregiver’s Guide to Dementia. Amherst, NY: Prometheus Books; 2008.

Web Sites – Disease-Related

NINDS-Dementia: Hope Through Research

AlzGene-Database of genetic association studies on Alzheimer disease

National Mental Health Association-Multi-Infarct Dementia

NINDS-Multi-Infarct Dementia

NINDS-Dementia With Lewy Bodies

NINDS-Frontotemporal Dementia

NINDS-Parkinson’s Disease

NINDS-Huntington Disease

National Institute on Aging.

Web Sites – Practice Guidelines

American Psychiatric Association-Practice Guideline for the Treatment of Patient’s With Alzheimer’s Disease and Other Dementias

American Association for Geriatric Psychiatry-Position Statements

AMA-Physician’s Guide to Assessing and Counseling Older Adult Drivers

American Academy of Neurology-Guideline Summary for Clinicians – Detection, Diagnosis, and Management of Dementia

American Academy of Neurology-Dementia Encounter Kit

American Geriatrics Society-Clinical Practice Guidelines – Dementia

Web Sites – Associations

Alzheimer’s Association

Lewy Body Dementia Association

The Association for Frontotemporal Dementias

American Parkinson Disease Association

Huntington’s Disease Society of America

Web Sites – Family and Caregiver Support

Alzheimer’s Disease Education and Referral Center

Family Caregiver Alliance


MedicAlert and Safe Return

NINDS, National Institute of Neurological Disorders and Stroke.

7. American Psychiatric Association, Work Group on Alzheimer’s Disease and Other Dementias. Practice Guideline for the Treatment of Patients With Alzheimer’s Disease and Other Dementias. 2nd ed. Washington, DC: American Psychiatric Association; 2007. Accessed December 25, 2009.

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