Resources on dementia for health care providers and caregivers

[Page updated 1/30/2019. Note that some resources/websites may have changed. -Ed]

Books

Mace NL, Rabins PV. The 36-Hour Day: A Family Guide to Caring for Persons With Alzheimer’s Disease, Related Dementia Illness, and Memory Loss in Later Life. Baltimore: Johns Hopkins University Press; 1999.

Mayo Clinic Guide to Alzheimer’s Disease: The Essential Resource for Treatment, Coping, and Caregiving. MayoClinic.com bookstore; 2006.

Rabins PV, Lyketsos CG, Steele CD. Practical Dementia Care. New York: Oxford University Press; 1999.

Warner M, Warner E, Warner ML. The Complete Guide to Alzheimer’s-Proofing Your Home. West Lafayette, IN: Purdue University Press; 2000.

Radin L, Radin G. What If It’s Not Alzheimer’s? A Caregiver’s Guide to Dementia. Amherst, NY: Prometheus Books; 2008.

Web Sites – Disease-Related

NINDS-Dementia: Hope Through Research http://www.ninds.nih.gov/disorders/dementias/detail_dementia.htm

AlzGene-Database of genetic association studies on Alzheimer disease http://www.alzgene.org

National Mental Health Association-Multi-Infarct Dementia http://www1.nmha.org/infoctr/factsheets/102.cfm

NINDS-Multi-Infarct Dementia http://www.ninds.nih.gov/disorders/multi_infarct_dementia/multi_infarct_dementia.htm

NINDS-Dementia With Lewy Bodies http://www.ninds.nih.gov/disorders/dementiawithlewybodies/dementiawithlewybodies.htm

NINDS-Frontotemporal Dementia http://www.ninds.nih.gov/disorders/picks/picks.htm

NINDS-Parkinson’s Disease http://www.ninds.nih.gov/disorders/parkinsons_disease/parkinsons_disease.htm

NINDS-Huntington Disease http://www.ninds.nih.gov/disorders/huntington/huntington.htm

National Institute on Aging. https://www.nia.nih.gov

Web Sites – Practice Guidelines

American Psychiatric Association-Practice Guideline for the Treatment of Patient’s With Alzheimer’s Disease and Other Dementias http://www.psychiatryonline.com/pracGuide/loadGuidelinePdf.aspx?file=AlzPG101007

American Association for Geriatric Psychiatry-Position Statements http://www.aagponline.org/prof/positions.asp

AMA-Physician’s Guide to Assessing and Counseling Older Adult Drivers http://www.ama-assn.org/ama/pub/category/10791.html

American Academy of Neurology-Guideline Summary for Clinicians – Detection, Diagnosis, and Management of Dementia http://www.aan.com/professionals/practice/pdfs/dementia_guideline.pdf

American Academy of Neurology-Dementia Encounter Kit http://www.aan.com/go/practice/quality/dementia

American Geriatrics Society-Clinical Practice Guidelines – Dementia http://www.americangeriatrics.org/products/positionpapers/aan_dementia.shtml

Web Sites – Associations

Alzheimer’s Association http://www.alz.org

Lewy Body Dementia Association http://www.lbda.org

The Association for Frontotemporal Dementias http://www.ftd-picks.org

American Parkinson Disease Association http://www.apdaparkinson.org

Huntington’s Disease Society of America http://www.hdsa.org

Web Sites – Family and Caregiver Support

Alzheimer’s Disease Education and Referral Center http://www.nia.nih.gov/Alzheimers

Family Caregiver Alliance http://www.caregiver.org

Eldercare http://www.eldercare.gov

MedicAlert and Safe Return http://www.alz.org/we_can_help_medicalert_safereturn.asp

NINDS, National Institute of Neurological Disorders and Stroke.

7. American Psychiatric Association, Work Group on Alzheimer’s Disease and Other Dementias. Practice Guideline for the Treatment of Patients With Alzheimer’s Disease and Other Dementias. 2nd ed. Washington, DC: American Psychiatric Association; 2007. http://www.psychiatryonline.com/pracGuide/loadGuidelinePdf.aspx?file=AlzPG101007. Accessed December 25, 2009.